神経難病の在宅医療—難病医療提供体制における在宅診療を担う医療機関の役割

Role of Medical Institutions Responsible for Home Care in the Medical Care Provision System for Intractable Neurological Diseases

神経難病は根本的な治療方法がなくADL低下が不可避の疾患であるため，患者はなんらかの支援を受けながら長期療養を余儀なくされる。神経難病患者の望む療養生活を切れ目なく支えるために，専門医療機関と地域医療機関のネットワーク構築が進められている。本論では難病医療提供体制における在宅診療を担う医療機関の役割について，実臨床に即して概説する。

Abstract

Due to progressive decline in activities of daily living, patients with intractable neurological diseases require long-term medical treatment with care and support. For continued medical- and nursing-care service provision desirable for patients, attempts have been made to establish a cooperation network system between specialized medical institutions and community healthcare institutions. This article describes the role of medical institutions responsible for home care in this system based on clinical practice.