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Coping and Supporting Patients and Families of Frontotemporal Lobar Degeneration Kohji Mori 1 , Shunsuke Sato 2 , Eiko Miyawaki 1,3 , Manabu Ikeda 1 1Department of Psychiatry, Osaka University Graduate School of Medicine 2Department of Psychiatry, Osaka General Medical Center 3Medical Affairs Division, Osaka University Hospital Keyword: 前頭側頭型認知症 , 前頭側頭葉変性症 , 意味性認知症 , 指定難病 , 支援 , FTLD-J , frontotemporal dementia , frontotemporal lobar degeneration , semantic dementia , designated intractable disease , support pp.623-632
Published Date 2020/6/1
DOI https://doi.org/10.11477/mf.1416201572
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Abstract

Frontotemporal lobar degeneration (FTLD) is a comprehensive term encompassing a group of clinically overlapping but heterogeneous conditions with selective frontal and temporal lobar neurodegeneration. Among the three clinical subtypes of FTLD, behavioral variant frontotemporal dementia (bvFTD) and semantic dementia (SD) were specified as "designated intractable diseases" by the Japanese Ministry of Health, Labor and Welfare in 2015. Under this designation system, relatively young patient with bvFTD or SD of certain severities can receive partial financial support from the Japanese local government. Here we introduce financial and social support for FTLD, including utilization of the designated intractable disease system and other support available in Japan. In addition, we describe the methods for coping and care of prominent symptoms in FTLD. Lastly, we address the current status of a nationwide Japanese FTLD study cohort named FTLD-J.


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電子版ISSN 1344-8129 印刷版ISSN 1881-6096 医学書院

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