Study of Process of Achieving Independent Living among Community-Dwelling Youngadulthood with Progressive Muscular Dystrophy Miku Yamaguchi 1 1Division of Human Health Sciences, Graduate School of Medicine, Kyoto University Keyword: 進行性筋ジストロフィー , 自立 , 依存 , 主体性 , progressive muscular dystrophy , independence , dependence , initiative pp.62-69
Published Date 2013/6/20
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 Purpose: This study aimed to examine the experience of patients with progressive muscular dystrophy, and clarify the status and process of achieving independent living.

 Methods: A qualitative descriptive study using a modified grounded theory approach was conducted involving 18 patients.

 Results: The subjects simultaneously experienced the process of [accepting the progression of the disease] in order to spend the rest of their lives with the disease, and that of [creating a balance between dependence on care and taking initiatives in activities of daily living] in order to be self-reliant as much as possible. In the process of achieving independent living, the subjects tried to [take initiatives in activities of daily living], suggesting that these processes were to《explore ways to take initiatives in their lives》.

 Conclusion: In《 exploring ways to take initiatives in their lives》, the subjects tried to maintain an attitude to take initiatives in their lives, even in a situation where they have to be physically dependent. The results suggested the need to provide appropriate support.

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