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Story of Selective Abortion following Prenatal Genetic Testing:Monograph Noriko Okubo 1 , Mariko Tamai 1 , Kiyomi Asahara 2 , Hiroko Kondo 1 , Yumiko Momose 1 1School of Health Sciences, Shinshu University 2St. Luke's College of Nursing Keyword: 出生前診断 , 遺伝子検査 , 解釈学的現象学 , 選択的妊娠中絶 , prenatal diagnosis , genetic test , hermenutic phenomenology , selective abortion pp.1-11
Published Date 2003/6/30
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Abstract

 The objective of this research was to describe the experience of selective abortion following prenatal genetic testing in a purposive sample of parents of children with hereditary diseases in order to provide suggestions for nursing in conjunction with genetic testing during pregnancy. The study used methods adapted from hermeneutic phenomenology described by Cohen et al., including participant observations and in-depth interviews. The setting of prenatal genetic testing was observed when three couples to participate at the time after informed consent, and interviewed three times for provided one person of an agreement to participate in a study. Two major themes emerged from these interviews,: the “breakdown of ties between others”and“the realization that they had conflicting values concerning disabilities in human beings.”Based on these main themes, narrative was represented, as follows.

Ⅰ. The effect of known genetic diseases

 1. Discordance between couple

 2. Differentiation between disabilities

 3. Looking for the root of genetic disease in a family

 4. Self-alimentation

Ⅱ. Selecting life

 1. Tentative fetal presence

 2. Being torn between negation and affirmation of disabled people

 3. Dealing with a dilemma: guilty feelings about forgetting the aborted child versus antipathy regarding grief work of the loss

 4. Meeting with internal eugenic idea

Ⅲ. Seeking to repair ties

 1. The ties between the couple and the family

 2. The need to lie

 3. Fear that one's present suffering will again be experienced by future generations

 These results suggest that nurses have to apply care to relationships with clients and their families, as well as society. Moreover, for consistent counseling and care, it is necessary for us to establish new nursing area that integrates genetic, pediatric, obstetric clinic, and the obstetric ward.


Copyright © 2003, Japan Academy of Nursing Science. All rights reserved.

基本情報

電子版ISSN 2185-8888 印刷版ISSN 0287-5330 日本看護科学学会

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