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The experiences of mothers whose fetuses were diagnosed with congenital heart disease by ultrasound during pregnancy Junko TADOKORO 1 1Bunkyo Gakuin University Keyword: 超音波検査 , 出生前診断 , 先天性心疾患 , 胎児異常 , 母親 , Ultrasound examination , prenatal diagnosis , congenital heart disease , fetal abnormality , mother pp.113-124
Published Date 2022/2/1
DOI https://doi.org/10.11477/mf.7011200115
  • Abstract
  • Reference

【Purpose】To clarify the experiences of mothers whose fetuses were diagnosed with congenital heart disease by ultrasound during pregnancy.

【Methods】This was a qualitative descriptive study. One-on-one semi-structured interviews were conducted with 7 mothers who agreed to participate. They spoke freely about the experience of being told that their fetuses had been diagnosed with a congenital heart disease. From this, we grouped similar events in a time series and summarized the narratives in context.

【Results】Seven time periods were extracted from the 7 mothers' experiences: 1) when it was first suspected the fetus had a congenital heart disease, 2) from when congenital heart disease was first suspected to when a definitive diagnosis was made, 3) when the definitive diagnosis was received, 4) from the definitive diagnosis to delivery, 5) delivery, 6) from delivery to about 1 month later, and 7) from about 1 month later to the present time. This study describes the experiences in periods from 1 to 4. Among the mothers having a fetus diagnosed with congenital heart disease by ultrasonography, some envisioned a worst-case scenario that "heart disease = death". However, there was what can be called a "turning point" when they realized it was possible for the fetus to survive. The experience then changed from one of pessimism, to trying to come to terms with their fetus and the disease and to move forward. Overall, the experience was a constant mix of pessimism and optimism. Moreover, because regular ultrasound examinations are assumed to confirm that the fetus is healthy, we believe the mothers' experiences are greatly influenced by them being able to imagine a bright future for the fetus and by thinking of things they could do as a mother.

【Conclusions】Although mothers experienced a "turning point," their experiences were a mix of optimism and pessimism. This study suggests that for these mothers, the main role expected of nurses is to provide close consultations and to offer appropriate information.


Copyright © 2022, The Japan Maternal and Infant Caring Association All rights reserved.

基本情報

電子版ISSN 2758-8092 印刷版ISSN 1882-2495 日本母子看護学会

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