重症心身障害児を育てる両親の育児観の分析と家族援助のあり方についての考察

Analysis of views of nursing by parents who raise severely multiply-handicapped children and a discussion of the methods of family support

要旨：重症心身障害児を育てる両親への援助は作業療法の重要な治療目的の一つである．両親の援助を行うためには，彼らの育児観を理解する必要がある．本研究の目的は，2組の両親の育児観を探り，家族援助のあり方を考察することにある．今回我々は，両親に半構成的インタビューを行い，語られた育児経験からチャートを作成し，彼らの育児観を分析した．両親は育児が家族の絆を深め，親自身を成長させたと肯定的に捉えていた．その背景には，親がありのままの子どもを受け入れたこと，子どもが社会的存在であると理解したことがあった．家族援助のあり方として，両親と共に親子関係のあり方を考えること，親子が共に有意義な人生を送るための援助を行うことが考えられた．

　Support for parents who raise severely multiply-handicapped children is one of the important purpose of occupational therapy. An understanding of nursing by parents is required for occupational therapist to provide proper support to them. The purposes of this study were to explore the views of nursing by two pairs of parents and to discuss methods of family support.

　We performed half-structural interviews with the parents, and analyzed their views of nursing on the basis of prepared charts from life histories provided by the parents. The parents recognized that nursing deepened the family bond and helped them grow.

　For this reason, we could point that the parents accepted their child as they were and understood that their child existed in social surroundings.

　As for methods of family support, we considered the types of the relationships for both parent-parent and parent-child, as well as support for parents and children to lead meaningful lives together.