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The Role of Coordinators for Intractable Diseases in Japan Miho Iwaki 1 1Division of Nursing Sciences, Department of Health Sciences, Graduate School of Medical Sciences, Kyushu University Keyword: 難病診療連携コーディネーター , 難病特別対策推進事業 , 療養相談 , レスパイト , 多職種連携 , coordinator for intractable diseases , Project for Promoting Special Measures for Intractable Diseases , medical consultation , respite care , multidisciplinary collaboration pp.711-714
Published Date 2026/6/1
DOI https://doi.org/10.11477/mf.188160960780060711
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Abstract

Coordinators for intractable diseases are deployed in 44 prefectures across Japan as part of the National Intractable Disease Countermeasures program, totaling 65 coordinators (as of May 2025). They handle a wide range of consultations, including coordination with medical institutions and responses to inquiries regarding medical care. Although the presence of these coordinators is highly valued in intractable disease medical settings, their activities vary considerably depending on the needs of each prefecture. Establishing a system to educate and support these coordinators, along with ensuring the quality of their training, remains a key challenge for the future.


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電子版ISSN 1344-8129 印刷版ISSN 1881-6096 医学書院

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