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神経難病医療は専門医の偏在および疾病の特性により,患者の医療へのアクセス制限が生じやすい構造的課題を抱えている。高齢化や感染症流行を背景に,遠隔医療は医療アクセス是正の解決策として期待が高まっている。デジタル技術は遠隔医療を補い,人工知能を併用することにより,神経難病医療をより連続的かつ個別化された医療へ発展させる可能性がある。
Abstract
The management of neurological intractable diseases is constrained by structural barriers, including the uneven distribution of specialists and the chronic, progressive course of these conditions, which limits timely access to appropriate care. In the context of an aging society and emerging infectious diseases, telemedicine and telehealth have gained prominence as strategies to improve access to specialized services. Advances in digital and information-communication technologies further strengthen these approaches by enabling remote monitoring and data-driven evaluation. In addition, integration with artificial intelligence may transform disease management by supporting continuous, proactive, and personalized care.

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