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Effect of Family Education on Caregiver Burden in Dementia Patients Mayumi Inoue 1 , Yumiko Moriwaki 1 , Toshiko Okawa 1 , Sumiyo Hashimoto 1 , Hiroko Kobayashi 2 , Nobutsugu Hirono 3 , Etsuro Mori 4 1Department of Nursing, Hyogo Institute for Aging Brain and Cognitive Disorders 2Clinical Neurosciences, Hyogo Institute for Aging Brain and Cognitive Disorders Keyword: 痴呆者 , 介護者負担 , 介護者教育 , 日本語版ZBI , Dementia , Caregiver burden , Zarit Caregiver Burden Interview , Caregiver education pp.227-234
Published Date 1999/6/15
DOI https://doi.org/10.11477/mf.1681900507
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 Background and Purpose: Caring for individuals with dementia poses a significant caregiver burden. Caregiver burden is associated with negative outcomes. Studies in Europe and North America have indicated that caregiver education effectively decreases the burden experienced by the caregivers of dementia patients, in Japan, however, no study has been carried out. We studied the effects of systematic caregiver education to the caregiver burden in dementia patients.

 Subjects and Methods: Subjects were 41 dementia patients who were given a short-term admission in our hospital for evaluaion and their principal caregivers. Diagnosis was made through extensive examinations including MRI and PET/SPECT of the brain. The patients included 27 women and 14 men; the mean age was 72.8±6.8 (SD) years. They included Alzheimer's disease (n=28), frontotemporal dementia (n=1), vascular dementia (n=8), corticobasal degeneration (n=1), dementia with Lewy bodies (n=2), and mitochondrial encephalopathy (n=1). The caregivers included the patients' spouses (n=21), offsprings (n=5), and off-spring's spouses (n=15). During the admission, all subjects received a comprehensive medical intervention and education of caregivers. A systematic educational program for caregivers of dementia includes informing nature and prognosis of the illness, teaching effective management strategies for behavior problems and functional disabilities, and providing information about resources available in their community such as home care, day care, and respite services. Trained nurses interviewed a principal caregiver of each patient by using a Japanese version of the Zarit Caregiver Burden Interview (ZBI) before entering the program and at follow-up (one month after the accomplishment of the program and discharge).

 Results: The mean total ZBI and Personal Strain (PS) scores decreased significantly at follow-up (Total score: before = 30.9±12.7, after = 27.3±13.0, p = 0.005; PS score: before = 19.5±7.8, after = 16.8±7.5, p = 0.002). However, the mean Role Strain (RS) score did not significantly change (before: 6.5±5.1, after: 6.5±5.3). Even after excluding the seven patients who received medications for their behavior problems, the results remained unchanged.

 Conclusions: These findings suggest systematic education of caregivers of dementia patients may lessen caregiver burden. Further studies are necessary to find the interventions which can decrease RS factor of caregiver burden.


Copyright © 1999, Igaku-Shoin Ltd. All rights reserved.

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電子版ISSN 1882-1405 印刷版ISSN 0022-8370 医学書院

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