筋ジストロフィー—『こんな夜更けにバナナかよ』

Muscular Dystrophy: A Banana? At This Time of the Night?

本邦では1964年から国立療養所に筋萎縮症病棟が整備され，医療，訓練，教育の機会が提供され療育が図られた。1990年代以降，心肺治療の進歩により筋ジストロフィーの生命予後は伸び，社会資本整備も進んだが，障害者の社会生活に対する支援体制整備にはなお時間を要した。『こんな夜更けにバナナかよ』は，自立生活を営んだ筋ジストロフィー患者とボランティアを描いた書籍であり，同書を原案に製作された映画作品である。

Abstract

In Japan, specialized wards for muscular dystrophy have been established in national hospitals since 1964, and opportunities for medical care, rehabilitation training, and education have been provided. Since the 90s, advances in ventilatory therapy and heart failure pharmacotherapy have resulted in increased life expectancy in patients with muscular dystrophy. The social infrastructure has also improved, but it still took long to develop support systems for the social lives of individuals with disabilities. A Banana? At This Time of the Night? is a non-fiction book about a muscular dystrophy patient who led an independent life and of the volunteers who supported him, which was adapted into a film.