群馬県での集団プログラムを受けた高次脳機能障害者とその家族における障害認識の差と介護負担感の関係

The relationship between the disability perception gap in individuals with higher brain dysfunction and the burden of caregivers who participated in the group program organized by Gunma Prefecture

要旨：本研究の目的は，当事者と介護者の遂行機能障害の認識の差と介護負担感との関係を明らかにすることである．群馬県在住の当事者8名と介護者7名を対象に，レクリエーションやミニ講座などの集団プログラムを約8ヵ月間で合計11回実施した．遂行機能障害の質問表やZarit介護負担尺度日本語版（以下，J-ZBI），プログラム中の行動変化を評価した．その結果から，当事者と介護者の遂行機能障害の認識に乖離を認め，その差はJ-ZBIのRS因子（介護者の役割負担尺度）と高い正相関を認めた（r＝0.775，p＜0.05）．集団プログラムの実施頻度を多くし，当事者・介護者それぞれに，障害への理解を深める取り組みが必要と示唆された．

　The purpose of the study is to clarify the relationship between the perception gap in executive dysfunction in individuals with higher brain dysfunction (HBD) and their caregivers and the caregiver burden. We have conducted group programs such as recreation and short lectures eleven times in eight months for eight individuals with HBD and the seven caregivers residing in Gunma Prefecture. They were evaluated by the Dysexecutive Questionnaire, the Japanese version of the Zarit caregiver Burden Interview (J-ZBI), and the behavioral changes in the program. As a result, the perception gap between individuals with HBD and the caregivers with respect to severity of executive dysfunction was identified, and the gap was highly correlated with Role strain scores of J-ZBI. The results suggest that it is necessary to increase the frequency of implementation of the group program and to deepen the understanding of disabilities for both individuals with HBD and their caregivers.